SLK NEWS & EVENTS
Greetings everyone!
Very pleased to share with a big thank you to #DaveRomeo and his show #FocusedOnSuccess. The #SLKFoundation sponsored a series spot for Trish Kisielnicki to share her story of the journey for the family and Sean! Please check this out at the 19 min and 30 sec mark and enjoy!!
CLICK HERE
SLK NEWS
EVENTS
UPCOMING EVENTS
August 28, 2021
Special Heroes For Special Kids Cruise!
Event by SLK Foundation, Battlefield Harley-Davidson and 4 others
Battlefield Harley-Davidson, 21 Cavalry Field Rd, Gettysburg, PA 17325
Saturday, August 28, 2021 at 11 AM EDT – 5 PM EDT
Tickets · Free - $50 www.eventbrite.com/e/special-heroes-for-special-kids-cruise-tickets-124877747705
Open to the public
The SLK Foundation brings you the opportunity to hang out at one of the best events of the summer. We will have live music, great food, and awesome fun for all. Enter your cruiser into the show for some additional hardware to take home if you are a winner. All while raising money for the SLK Foundation to continue serving families with children diagnosed with Rare Disease! Thank you for your considerations to join us! Remember, "A disease may be RARE, but HOPE should not be!" See you at Battlefield in August!! Click HERE for flyer.
Did you see this article and video on Fox 43? Click here.
Welcome to The SLK Foundation!
Our mission is focused on love of family and service to others by providing service and support to families of children who have a rare diagnosis, in some cases a terminal illness.
Our mission is to raise awareness, take part in community events and fundraising, and to reach out to assist other children under special care. We will be a stronghold in the community and provide services, information and financial assistance to families in need with children battling the fight for their life.
Click HERE to see how one of our families are affected by having a child with a rare disease.
UPCOMING EVENTS
Friday, May 6, 2022
Please help us reach our goal next year to support these families Rare Kiddos!
Check back for more events as dates are formalized.
Thanks to all who supported our gun raffle!
SLK was born
While staying home from a family trip, Stephen Trott, President and Founder, was doing some reading. His nephew, Sean, was diagnosed with Hunters Syndrome (MPS II) on his 3rd birthday in 2013.
Stephen began to brainstorm “How can I help?” About two hours later, and most of a notebook filled, the SLK Foundation concept was born.
SLK proudly stands for Sean Louis Kisielnicki Foundation, and this is how Stephen could help. With the mission of being built on love of family and service to others, the SLK Foundation would be formed with the intention of what Sean would inspire the organization to become. The Foundation would focus on assisting not only Sean's journey with MPS, but also reach out into the special needs world and help other children dealing with special diagnosis. The SLK Foundation was officially born on Sean's birthday, May 29th, 2016, as a family gift to Sean's parents and siblings.
The SLK Foundation will build a legacy of love and support to those families with children diagnosed with rare disease and some that have a terminal diagnosis. The Foundation will forever carry the inspiration of Sean Louis Kisielnicki and work hard to positively impact the lives of as many families as possible.
Causes
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SLK Foundation is committed to the service of families with rare disease and terminal illness. We want to reach out in the community to help more families who have children with special needs, and are always looking for volunteers to help us achieve our mission.
If you know of someone who we may be able to help, or would like to assist us achieve our mission, we could really use your help! Please give us a call.
"God is not unjust; he will not forget your work and the love you have shown him as you have helped his people and continue to help them."
Hebrews 6:10 NIV
